Recovering from Brain Injury

MysterYvil

Mr. Bad Example
In April of this year I blew out my carotid artery (technically, I suffered "a dissection of the carotid artery), which resulted in five stroke events. Luckily, I was having lunch with Mrs. at the time of the strokes; she immediately called 911, and the first responders were prompt in arriving and dead-on with their assessment.

[I'm 46, with good blood pressure, blood sugar, cholesterol, and BMI, and a four-year record of them. The Kaiser docs were very surprised. Talk about no longer being "ten feet tall and bulletproof!"]

Spent four days in ICU and seven as an inpatient. The immediate effects were slackness/loss of control of the right side of my face, loss of use of my left arm from the shoulder down (I could feel stimuli, but had no control), holes in my long- and short-term memory, and a difficulty in forming new short-term memories.

The facial slackness went away in the first two days, without a conscious effort on my part. I still occasionally have hitches, but they are momentary at worst.

The loss of use of my left arm was a real concern; I'm not ready to step back to a Helix, and the DN-01 just ain't my style. I spent the first day in the hospital concentrating on my left arm, and by the end of the day I could twitch my fingers. I whined until they sent me a physical therapist- he made me a squeeze-ball of surgical gloves and medical tape, which I used throughout my hospital stay, and still have today.

On Day Three, a good friend of mine brought me a keyboard (I've been a data-grind for almost twenty years). It was the opinion of my second PT professional that doing tasks my brain was acquainted with would help with my recovery, help my brain forge new pathways to usual tasks. She was very right, in my case- I worked that keyboard assiduously, and by Day Six was able to type without conscious thought.

To this day, though, memory is still dodgy. I've been working crossword puzzles and re-reading old books to work that out. It seems to be helping, but I still have to think hard about getting from Point A to Point B, in my hometown and in SF, both of which I had previously owned in my mind.

I was discharged on Easter Sunday, after 11 days in the hospital. Directed to avoid head injuries (therefore, no riding), "heavy" physical activity (therefore, no workouts), and put on 7.5mg/5.0mg Warfarin (a blood thinner), and 60mg Simvistatin (a cholesterol med, to keep things from sticking).

The "no head injuries" directive kept me out of the saddle for six months.

While on the meds I developed fibromyalgia, much to my chagrin. Tingling and random pains...

In mid-October, I had a follow-up CT-Angio test, which determined that my carotid was a healed as it was ever going to get. The docs directed me to leave off the meds, and said I could resume riding after a week.

Exactly one week after I was back on my moto. I wanted to ride forever, but riding takes better shape than what I was in... And the first small-group ride I did, a mere two hours, left me totally shagged out.

Six months of lazing about and not working out had robbed me of the basic strength to ride, and had dulled my reflexes immensely.

Long (TL,dr) story short, I'm still riding as cautiously as a newbie, and I'm still taking it slow and steady. I can get to and from work, but I ain't yet back up to Friday Night standards.

But I will be! :teeth
 

Ironbutt

Loves the anecdotal
Wow man, glad you're still here to type. Get better soon so we can get to swilling beers..
 

MysterYvil

Mr. Bad Example
Wow man, glad you're still here to type. Get better soon so we can get to swilling beers..
Thank you!

The worst part about being on high-dosage blood thinners? NO RIDING!

The second worst? Only two beers a day... :rofl

(I'm hoping we can all do a mended riders beer-a-thon next year, just before the "official" riding season starts!)
 

Ironbutt

Loves the anecdotal
Heck, i can't really drink more than two beers either; if I make it to three, I piss the first two out. Then i have to start all over again.. sheese!

How does one go about rupturing their neck artery anyway? Good sex?



Thank you!

The worst part about being on high-dosage blood thinners? NO RIDING!

The second worst? Only two beers a day... :rofl

(I'm hoping we can all do a mended riders beer-a-thon next year, just before the "official" riding season starts!)
 

MysterYvil

Mr. Bad Example
Heck, i can't really drink more than two beers either; if I make it to three, I piss the first two out. Then i have to start all over again.. sheese!
Ditto here, but isn't starting over part of the charm of beer? :thumbup

How does one go about rupturing their neck artery anyway? Good sex?
Sneezing, of all things. Usually a dissection is a result of bad vascular condition (not even close in my case) or a neck injury. Mine was due to "suddenly elevated intrathoracic pressure." I had 10-12 hard sneezes, which overstrained my carotid artery. Who knew?

(And I've had TONS of good sex, but never blew out my carotid. However, the incident out most definitely affected my sex life, as apparently no one wanted to be known as the one who killed me...:teeth)


:wow

Thanks for sharing your story. Glad to have you with us!
Thank you, and my pleasure!



PS- if your partner dials 911 'cause she thinks you're having a stroke, DO NOT ARGUE! She's right, and you'll feel stupid when you're laid up in a hospital from a stroke...
 
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planegray

Redwood Original
Staff member
Thank you for sharing your experience with us. Your description of that event was insightful, frightening, and inspiring.

I hope you rapidly resume your normal life and activities :thumbup
 

spf_970

Steve
Wow, thanks for sharing your story. Eye opener for sure and glad you are on a fast road to recovery. I guess it just goes to show everybody it does not really matter how young or how great of shape you are in freak things can happen.
 

Nemo Brinker

Tonight we ride
Wow. Glad you're here. And thanks for writing about your own ability to bounce back--has the potential to be inspiring and useful to others, esp. those among us who've had traumatic brain injury.

Also, it is somewhat corny and ever so popular, but have you read Jill Bolte Taylor's "My Stroke of Insight?"

She, too, had a really early and unexpected stroke and had to fight like mad to regain her brain function--as a neurologist and scientist. She's developed a pretty bitchin' theory of brain plasticity, and is convinced that with support, rest, and gradual training and activities, people can regain their brain.

Good luck in continued recovery, man. :thumbup
 

budman

General Menace
Staff member
:wow

Scary stuff.. glad your off the med's and back in the saddle.. quite the journey and it seems like you are getting back to being you again.... a rider :thumbup
 

horsepower

WaterRider/Landsurfer
Good to hear you are on the road to recovery... and those short- but- sweet rides are an awesome start.:thumbup
 

Mr Pepsi

Mr Pepsi (Brent)
So glad you're here to tell the story.
I've heard that sneezing puts an enormous amount of pressure on the brain but dang.
Now if I ever sneeze past five I'm gunna be thinking of you and I don't think I even know you.
Keep up the recovery!
 

kiltwearinfool

do not read this title
Yours is the second similar story in as many months - Clean health Hx, good BP, blood workup, and carotid artery problems. Scary. Other than the sneeze, can you recall anything that gave you a sign this was in store? Lightheadedness? arrythmia?

Super scary, glad to hear you are on the mend. Keep at it, the body is a wonderful machine.
 

MysterYvil

Mr. Bad Example
Thanks, everyone, for all the kind thoughts!

Also, it is somewhat corny and ever so popular, but have you read Jill Bolte Taylor's "My Stroke of Insight?"
I'd heard of it, and was trying to remember the author/title. Thank you, I've ordered it, and I'll let everyone know how it compares. ;)

I've heard that sneezing puts an enormous amount of pressure on the brain but dang.
Now if I ever sneeze past five I'm gunna be thinking of you and I don't think I even know you.
Every time I sneeze, whether at work or at home, I end up with the women who run my life running over and giving me very concerned looks...

Yours is the second similar story in as many months - Clean health Hx, good BP, blood workup, and carotid artery problems. Scary. Other than the sneeze, can you recall anything that gave you a sign this was in store? Lightheadedness? arrythmia?
I didn't have any previous known carotid artery or circulatory issues. In my life, I've been in a multiple-roll car accident, spilled my moto hard enough to crack the helmet, hit a tree while snowmobiling hard enough to snap the helmet strap, been knocked off my feet by a two-handed pear-splitting boken stroke (no helmet, of course), got tuned up by a Chicago PD PR-24, and been punched hard enough to loosen six teeth in one blow; never a life-threatening problem. No family history of vascular problems, either.

A few sneezes, though, did the damage. I had no idea that sneezing was so dangerous, no symptoms beforehand, no warning at all. Apparently dissection of the carotid artery usually results from some serious vascular issues (I had none), or trauma to the head/neck (not that time) and very very rarely from hard sneezing/coughing/vomiting.

On top of overall good health, I walk a minimum of two miles a day and do a light workout every other.

Detail-wise, I had a multiple-sneeze fit as I got ready for work. Within about 30 minutes I noticed that my right jaw was really stiff, to the point that I joked with Mrs. as she left for work that I'd sneezed my jaw out of place.

About half an hour after that, while working, I noticed an odd visual effect; a sideways "U" shape of glowing dots. Called Mrs. (she's a 15-year optometry veteran), and she told me it sounded like a typical migraine precursor. (I have had cluster migraines for years, but this was not one of my usual symptoms.)

Took a pair of Excedrin migraine pills and laid down to sleep it off.

Four hours after the sneezes, I met Mrs. for lunch at one of our usual restaurants. Just after ordering I noticed that the tea I was sipping was pretty much falling out of my mouth (slack right side of the face). Touched my face to try to figure out what was going on, then Mrs. was quizzing me about why I was being a dick (we'd talked about strokes very recently, and she thought I might be faking in very poor taste). Apparently I then mumbled a bit, she asked me to grip her hand, which I couldn't do, then her cellphone was out and paramedics were on the way. A lot of that is blurry to me, and I can only relate by anecdote.

According to the docs, I'd had a dissection of the carotid artery when I sneezed, followed by minor subarachnoid hemorrhage; my body tried to repair the damage, but clots broke free of the damaged carotid and lodged all about my head, causing the strokes.

BTW, it seems that a lot of stroke victims don't know they're having a stroke; I sure as hell didn't. Trust your friends, and trust the professionals.

The paramedics got there in under five minutes, and had me to an ER in another five or ten. Lots of very concerned voices, then a CT scan, then a transfer to UCSF's Neuro ICU.

Over the next couple of days I had another CT scan, a CT angiogram (CT scan with stuff in your blood), and an MRI (had to take all the metal out of me, and they had to have assurances that I didn't have possible metal splinters/slivers in me. Keep your responsible ones up-to-date so they can pass info to the medical staff!)

Then it was ICU and inpatient time, as detailed in my first post. Did you know that 22 laps of Kaiser's Geary facility is one mile? I do...

(Also, someone mentioned good sex. :teeth I wish it was that, as I'd love to go out in a naked lady avalanche, but alas, such was not the case. The event has put a damper on my sex life, as apparently women only want to kill men via sex in books...)
 
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Ms blrmaker

Pit Girl
Well thank you for sharing your story. I too am glad your still around to share this kind of trauma. Maybe this will help others recognize problems earlier.

I am glad your out riding, and hope to see you out there! :ride
 

Ironbutt

Loves the anecdotal
(Also, someone mentioned good sex. :teeth I wish it was that, as I'd love to go out in a naked lady avalanche, but alas, such was not the case. The event has put a damper on my sex life, as apparently women only want to kill men via sex in books...)

:laughing You're a trip man..
 
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